Life Experiences of Mothers of Children with an Intellectual Disability: A Qualitative Study

İNAN BUDAK M., KÜÇÜK L., CİVELEK H. Y.

JOURNAL OF MENTAL HEALTH RESEARCH IN INTELLECTUAL DISABILITIES, cilt.11, sa.4, ss.301-321, 2018 (SSCI, Scopus)

Özet

Introduction: Mothers of intellectually disabled children face several psychological problems. Qualitative studies use a process that can reveal truthful perceptions and help mothers express their emotions about their unique and personal experiences. Method: This study used a qualitative research method design with a hermeneutic approach to examine the life experiences of mothers of children with intellectual disabilities in light of their caregiving experiences. Results: A phenomenological, hermeneutical analysis with an inductive approach was used. The categories of interest were determined to be "impact," "care management," "stigma," "uncertainty," "relations," and "search for meaning." Conclusions: Not all mothers perceive having an intellectually disabled child negatively. Some mothers may not experience any problems providing care to their children. Almost all mothers, however, have concerns for the future and experience significant changes in their family and social relationships.